More prevalent than Huntington’s Disease or Cystic Fibrosis, Neurofibromatosis is a lesser-known common genetic disorder that causes tumors to grow on the nerves or in the body which can lead to developmental delays and learning disabilities. As part of their efforts towards help for victims of the disorder, the National Neurofibromatisis Foundation (NNFF) is holding a program called the May Tea Party. Those who choose to contribute to the cause receive invitations and envelopes that each include a tea bag, so that they can personalize the invitations and send them out to friends and family to offer them a symbolic seat at the tea party for a return contribution.
The tea artwork on the cover of the invitation is by Susan Lawson-Bell, renowned tea artist, and Eastern Tea Company has supplied the complimentary tea bags enclosed within the invitations. Those who desire may even choose to have a real May Tea Party to raise money, and this year NNFF may hold a May Tea Party fundraiser at a New York City hotspot.
The NNFF sponsors scientific research towards treatment and cures for NF, as well as support services for its victims and public awareness of the disorder and more. For further information contact:
The National Neurofibromatosis Foundation, Inc., 95 Pine Street, 16th Floor, New York, NY 10005. Tel: (212) 344-6633, (800) 323-7938, Fax: (212) 747-0004, E-mail: nnff@nf.org, Web site: www.nf.org